25th October 1998
Medical Conference
The Late Effects of Polio and Post Polio Syndrome

Early notice for Friday 12th and Saturday 13th March 1999

The Green Isle Hotel
Naas Road, Dublin 22. Ireland

Fee: £25.00 (Includes lunches and coffees)

Speakers from USA, Denmark and Ireland

For further information contact:

Post Polio Support Group
Carmichael Centre, North Brunswick Street
Dublin 7. Ireland. Tel.+ 353 1 873 0338
Fax.+ 353 1 283 1409 E-mail: ppsg@tinet.ie
http://homepage.tinet.ie/~ppsg/

For updated information on this conference see Conference Card #0003 in our World-Wide Conference and Seminar Diary

21st October 1998
Mini Conference at Richmond, Virginia

given by
The Central Virginia Post-Polio Support Group
and the Sheltering Arms Rehab Post-Polio Clinic
Saturday, November 14th

To be held at Sheltering Arms Rehab Center, Main Auditorium, 1311 Palmyra Avenue, Richmond, Virginia 23227 on Saturday, November 14th from 1:00 to 5:00 PM (Entry free of charge).

Contact Henry Holland at 804-288-8295, if you need further information.

Conference Schedule:

1:00 PM - Welcome and Introduction of Main Speaker by Dr. Henry Holland, President of the Central VA PPS Support Group.

Topic: "The Post-Polio Brain and Treatment of Post-Polio Syndrome" by Dr. Richard Bruno, Director of The Post-Polio Institute at Englewood Hospital and Medical Center, Englewood, New Jersey.

1:50pm to 2:00pm - A ten minute break.

2:00pm to 2:50pm - Dr. Bruno continues.

2:50pm to 3:10pm - Twenty minute refreshment break.

3:10pm to 4:00pm - Sheltering Arms Post-Polio Clinic Update by Dr. Jane Wooten, Director of the Clinic.

4:00pm to 4:10pm - A ten minute break.

4:10pm to 5:00pm - Panel consisting of Drs. Bruno, Wooten and Holland will respond to questions.

5:00pm - Adjournment.

The Central Virginia PPSG encourage all their support group members and their families to attend this very special meeting. They wish to express their thanks to Sheltering Arms for their continued support in CVPPSG's effort to bring the latest information to their members.

9th October 1998
7th International Conference on Home Ventilation

Early notice for March 14-17, 1999

"Noninvasive Ventilation Across the Spectrum From Critical Care to Home Care"

March 14-17, 1999, Caribe Royale Resort Suites, Orlando, Florida, USA

Sponsored by
American College of Chest Physicians (ACCP)
American Association for Respiratory Care (AARC)
In conjunction with
International Ventilator Users Network (IVUN)
National Jewish Medical and Research Center
Journees Internationale de Ventilation a Domicile

Speakers include ventilator users plus the physicians most knowledgeable about neuromuscular disease and assisted ventilation: Augusta Alba, MD; John Bach, MD; Gerald Criner, MD; Allen Goldberg, MD; Nicholas Hill, MD; Patrick Leger, MD; Barry Make, MD; E.A. Oppenheimer, MD; and Mark Sanders, MD.

Topics include nutrition, secretion enhancement techniques, nocturnal hypoventilation, nasal masks, psychosocial aspects of longterm ventilation, quality of life, ALS, cystic fibrosis, swallowing disorders, transition from tracheostomy to noninvasive ventilation, and much more.

Hotel reservations: The Caribe Royale Resort Suites, 800/823-8300 or 407/238-8000. Ask for "ACCP/AARC Noninvasive Ventilation Meeting." The rate for a queen double room is $159 per night (breakfast included), plus applicable taxes.

Airline reservations: For discounted travel, phone Ridgebrook Travel, 800/962-0560 or 847/374-0077. Delta Airlines contract #119851A; United Airlines contract #523XV. Ridgebrook Travel will also book rental cars through Avis, contract #J095524sa.

Registration: For registration form, contact IVUN, 4207 Lindell Blvd., #110, St. Louis, Missouri (MO) 63108-2915 USA. (314/534-0475, 314/534-5070 fax, gini_intl@msn.com).

For updated information on this conference see Conference Card #0004 in our World-Wide Conference and Seminar Diary

2nd October 1998
Conference Report

COLORADO'S 1998 POST-POLIO CONFERENCE
"FUTURE APPROACHES FOR POLIO SURVIVORS"
August 28-29. 1998

This year, our fifth State Conference brought us 187 survivors from 12 states and one foreign country: Alaska, Arizona, California, Colorado, Minnesota, New Mexico, Oklahoma, Nebraska, South Dakota, Texas, Washington, Wyoming and Salzburg, Austria. There were sixteen speakers plus 21 exhibitors. The committee members worked until exhaustion. Special thanks to Woody Trosper, our Conference chairman, who put in hours and hours getting the conference ready. This was Woody's first experience putting together a conference. She fought harder than the French Foreign Legion to solve the battles of the hotel war and speaker drop-outs. Another special thanks to Lynda Smeltzer, our Easter Seal liaison, who was there to help through all the planning stages, and the Easter Seal staff, especially computer genius Melanie Tomitsch. Todd Lowther, a Vice President at Easter Seals, and the Clear Creek No Name Band entertained us royally Friday night without remuneration.

Thank you, all of you who were there, for your patience with our unexpected obstacles. The conference evaluations were mostly positive, but there were a few who were not satisfied by the presentations. Our title "Future Approaches..." was hard to address adequately; partly due to our speaker problems, but mostly because there are no new drugs or procedures that can cover the whole spectrum of Post-Polio Syndrome - including what it's labeled: Post-Polio Sequelae, Post-Polio Muscular Atrophy, the Late Effects of Polio...

Post-Polio conferences have more going for them beside speaker's expertise and exhibitor's newest products. Conferences all have polio survivors who gather together from inside and outside the state. These are the post-polio experts! These are the people who can, and do, share their knowledge and experience with anyone who has need of their hard-earned advice. Everywhere we looked we saw heads together as they advised, listened and learned from each other.

The Internet has added to our awareness of polio survivors from around the world. The Internet has amplified the knowledge that we in the United States have been lucky to live in a country so advanced in medical technology. We complain about the expense but the knowledge is there. We just need a less expensive method to tap into the rehabilitation system.

CONFERENCE VIDEO & AUDIO TAPES AVAILABLE

CVA Audio, 2480 W. Alameda Ave., Denver, CO 80223
Phone: 303/935-2222 Fax: 303/935-9552

Audio Tapes $8.00 per tape, $7.00 from 2 to 12 tapes ,$78.00 for complete set of tapes.

Video tapes $19.95 each or $50.00 for three video tapes.

For international video tape format considerations see Videotape List - Important Technical Information.

1. Dr. Marny Eulberg (polio survivor) - "Primary Care Physician's Role in Wellness"
2. Dr. Stanley Yarnell -"Understanding The Late Effects of Polio: Where Are We? Where Are We Going?"
3. Dysphagia - Swallowing difficulties - Stephanie Langren M.S., CCC-SLP
4. Special Nutritional Considerations for those with Post-Polio Disability - Jean Cassidy, BA
5. Independent Living. - Bonnie Good, B.S.
6. Working With Your Inner World - Roland Evans , MA, Diploma, Chartered clinical psychologist with British Psychological Society.
7. Conserving your Energy.. - Grace Young , BS, MA, OTR (polio survivor)
8. Social Security - How to get your needs met through the system.- Julie Reiskin, M.A.
9. Polio Survey results from St. Mary's Post-Polio Clinic, San Francisco, CA - Dr. Stanley Yarnell. (Substitution)
10. To tell our story. Keeping a Journal - Richard Johns (polio survivor). (Substitution)
11. Tender Loving Care For Yourself. - Felicity Spring, M.A.
12. Healing Dreams: - Jerry Ruhl, Ph.D
13. Canceled (Pulmonologist was a no show)

If you have questions e-mail me at mhamil1185@aol.com
Mary Ann Hamilton,
Editor Colorado Post-Polio Connections