Short news items with a Post-Polio element gleaned
from 'here, there and everywhere'. Contributions welcomed. Email linpolioweb@loncps.demon.co.uk.
Please make it clear that your news item is for inclusion in NewsBites
and include any source references.
16th December 1998
The American Academy of Pediatrics revises guidelines on the use of Polio
Vaccines
The American Academy of Pediatrics (AAP)
issued a statement to its 55,000 member pediatricians offering new vaccine
recommendations for the four dose immunization series to prevent polio
in children. The policy recommendations appear in the December 1998
issue of AAP News, the official newsmagazine of the American Academy
of Pediatrics.
The AAP now recommends that most children in the United States receive
the inactivated poliovirus vaccine (IPV), which is received as an injection
at 2 and 4 months of age for the first two doses. Either the IPV or
the oral poliovirus vaccine (OPV) is recommended for the third dose
at 6 to 18 months and the fourth dose at 4 to 6 years. Depending on
the childs medical history, pediatricians also may choose to give
IPV for the entire four dose schedule. This new recommendation also
is aimed at reducing the rare instance of vaccine-associated paralytic
poliomyelitis (VAPP), which is associated with the live virus within
OPV.
The above are the two opening paragraphs of a press release issued December
9, 1998, 5 p.m. (ET). The full text can be found at http://www.aap.org/advocacy/archives/decpolio.htm
The article referred to in the press release, Revised IPV-OPV recommendations
approved from the December 1998 AAP News, the official news magazine
of the American Academy of Pediatrics, is also available at http://www.aap.org/advocacy/ipvopv.htm
and the Policy Statement Poliomyelitis Prevention: Revised Recommendations
for Use of Inactivated and Live Oral Poliovirus Vaccines (RE9853)
at http://www.aap.org/policy/re9853.html.
ACIP's similarly revised recommendations are reported in NewsBites
6th January 1999.
For other Polio Vaccine related resources see our directory Polio
Virus, Vaccine and Eradication
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Invitation to Participants
Deadline for survey returns extended to 15th February
1999
Following this covering letter you will find a link to the survey itself.
December 1, 1998
Dear Participant:
My name is Carrie Scheberies and I am completing my Masters degree
in Physical Therapy at Armstrong Atlantic State University. I am currently
working on my thesis requirement and have chosen to focus on issues
regarding the Postpolio group. I am surveying people with Postpolio
Syndrome to ascertain the level of patient satisfaction with physical
therapy services. Much current research regarding Postpolio Syndrome
has expressed patient dissatisfaction with health care in general, yet
none has specifically focused on physical therapy services.
The information obtained by this survey will offer insight as to current
patient satisfaction with physical therapy and which areas of service
clients may feel are not as beneficial. It may also be a means to discover
ways to improve the patient-provider relationship for better quality
of care.
Criteria for inclusion in this study are
- that you were initially diagnosed with polio years ago,
- that you have since been diagnosed with Postpolio Syndrome, and
- that you have seen a physical therapist in the last year.
Attached is a Therapist Evaluation Form and some additional questions
regarding your perceptions of your physical therapy experience. Your
participation in this study is voluntary. These questions should take
approximately ten minutes to complete. Please return this survey to
the investigator upon completion either by emailing it or by mailing
it to the respective address below. I will score these surveys personally
and ensure that your answers will be kept confidential. Completion of
this survey will be regarded as your informed consent.
If you have any questions about the survey, please feel free to contact
me at the Department of Physical Therapy at Armstrong Atlantic State
University (912)-921-2327. If you have any questions or concerns about
your rights as a research participant in this study, you may contact
the Institutional Review Board Chairman at Armstrong Atlantic State
University, Dr. Emma T. Simon. Her telephone number is (912) 927-5377.
Thank you so much for your time and cooperation. Your participation
is greatly appreciated.
Sincerely,
Carrie Scheberies
email address: schebeca@pirates.armstrong.edu
mailing address: 437-B Tibet Avenue, Savannah, Ga. 31406
The Post-Polio Syndrome
Central web site has put the survey form online. You can choose between
an online form or a simple text version which you can return by email
or normal postal services. The following link will take you to the entry
page which in addition to a copy of the above letter has links to the
survey forms. The online form version contains information you should
read before deciding to participate.
http://www.skally.net/ppsc/c-survey.htm
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On Saturday, December 5, 1998 Dr. Jacquelin Perry of Rancho Los Amigos
Medical Center in Downey, CA, known world wide as a polio expert, will
be the guest speaker at the Rancho Los Amigos Post-Polio Support Group
meeting. The meeting will be held at a new location and time:
Rancho Los Amigos Medical Center
7601 E. Imperial Hwy.
Downey, CA 90242
**Room 1150, Support Services Annex
(north of Imperial Hwy., off Old River School Rd. - adjacent to the parking
structure)
1:00 to 3:00 PM Saturday, December 5, 1998
Everyone is invited to attend.
Dr. Perry continues to see patients at the Rancho Los Amigos Medical
Center polio clinic on Tuesdays and Fridays.
To make an appointment for a new evaluation or follow-up, call (562)
401-8264.
Dr. Perry will also be a key speaker at the Dublin Conference, "Polio
in the 21st Century" in March 1999. For updated information on that conference
see Conference Card
#0003 in our World-Wide
Conference and Seminar Diary
Articles by Dr. Perry can be found in our Lincolnshire Post-Polio Library.
See the catalogue for:
Perry, Jacquelin, M.D., D.Sc. (Hon)
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