Directory: International/National/Local Support Organizations [Lincolnshire Post-Polio Network]

International/National/Local Support Organizations

This directory includes individual support groups as well as co-ordinating organizations. It only covers groups and organizations that have either a web site or have given their permission for detailed information to be presented on this web site. Non-appearence of any group or organization here simply means we are either unaware of their existance or have not as yet approached them for inclusion in this directory. The latter category is quite large so if you are unable to locate in this directory a group or organization near you, do please email us at info@lincolnshirepostpolio.org.uk as we may be able to help. We don't need your full address details, just your locality. Bear in mind that we are not experts in geography so please include any significant centre of population near you as well as your own town and state, municipality or county.

International/National/Local Support Organizations Index

International

Post-Polio Health International
http://www.post-polio.org/
Formally the International Polio Network/Gazette International Networking Institute (G.I.N.I.).

Post-Polio Health International (PHI) disseminates information and organizes conferences about the late effects of polio, encourages research, and promotes networking among the post-polio community world-wide. PHI publishes the quarterly Polio Network News and the annual Post-Polio Directory.

The International Ventilator Users Network connects ventilator users and their families with each other and with health care professionals committed to home mechanical ventilation. I.V.U.N. publishes the semi-annual newsletter I.V.U.N. News.

Joan Headley, Executive Director explains some of its guiding principles in her article Networking.

International Polio Network
4207 Lindell Blvd. #110
Saint Louis, Missouri (MO) 63108-2915
USA

314/534-0475
314/534-5070 FAX
Relay MO: 800/735-2966 (TDD), 2466 (V)

e-mail: gini_intl@msn.com

Previous Conferences:
See our World-Wide Conference and Seminar Diary
Conference Card #0006
Conference Card #0004

Africa

South Africa

Post-Polio Network RSA
http://www.postpolio.co.za/
was the South African Post-Polio Syndrome Association: Cilla Webster founded The South African Post-Polio Syndrome Association, now renamed Post-Polio Network RSA. It is her intention that there will be chapters in all provinces where PPS sufferers can get together under the auspices of the Network.

Australia

In addition to the resources listed below, two booklets originally published in Australia contain information of specific interest to Australians. The can be found in our library and are A practical approach to the late effects of polio and The late effects of Polio - Information for Health Care Providers

New South Wales | South Australia | Victoria | Western Australia

New South Wales

Post-Polio Network (NSW, Australia) Inc
http://www.post-polionetwork.org.au/index2.html
was http://www.ozemail.com.au/~tonymski/: This site has not only been moved to a new URL address, it has also been redesigned. It now includes Contact Info, Local Seminars, Committee Members, Polio Awareness, The Late Effects of Polio, A Short History, Selected Articles, Newsletters, Polio Eradication and Acute Flaccid Paralysis Surveillance (Info for GP's), Disability Complaints Service, Patient Support Office, Accessible Public Transport, Membership Form and Stuff FOR SALE.

South Australia

Post Polio Support Group of SA Inc
http://www.span.com.au/nrc/p_polio_intro.html
Site no longer exists.: Contact and other information about the support group.

Tasmania

The Post Polio Network - Tasmania Inc.
http://www.hotkey.net.au/~polio.tas/
was http://www.tased.edu.au/tasonline/polionet/: The Post Polio Network - Tasmania Inc. was established in May 1998 when a need was seen for a state-wide polio network similar to those established in other states of Australia.

Victoria

Polio Network Victoria
http://www.polionetworkvic.asn.au/
was http://www.paraquad.asn.au/services/polio/polio.html: Contact and other information about the support group.
See our World-Wide Conference and Seminar Diary for details of their conference Polio 2000 and beyond scheduled for January 19th, 2000 to January 22nd, 2000.

Mornington Peninsula Post-Polio Support Group
http://people.aapt.net.au/~ddlloyd/
Currently Unavailable 19/05/2009.
was http://www.satlink.com.au/~ddlloyd/: Contact information about the support group plus a downloadable 'Introduction Kit' containing a number of articles about post-polio conditions.

Western Australia

Post Polio Network Of WA Inc
http://www.upnaway.com.au/~poliowa/: Contact and other information (Newsletters, Booklets and Research) about the support group.

Belgium

Post-Polio Belgium
http://www.postpolio.be/: Multi-language site (Nederlands, Français, English).

Canada

British Columbia | Ontario | Quebec | Saskatchewan

British Columbia

The Post Polio Awareness & Support Society of British Columbia
http://www.ppass.bc.ca/

"The Post Polio Awareness & Support Society of British Columbia was formed to provide a Support Network for all polio survivors. Our Mission is to develop Awareness, Communication and Education between the Society and the Community. to compile a library of all the latest information regarding research into Post Polio Syndrome and to make that information available to polio survivors, medical practitioners and the general public. to heighten awareness in the community about Post Polio Syndrome and the effects it has on the day to day lives of polio survivors and their families. To encourage research so that a treatment method may be developed and introduced to all hospitals where diagnosis and treatment may be available. To provide 24 hour help line for polio survivors or individuals seeking information about Post Polio Syndrome."

Future Symposium:
See Polio and Post-Polio News | Post Polio Awareness & Support Society of British Columbia Symposium 2006.
Previous Conferences:
See our World-Wide Conference and Seminar Diary Conference Card #0012

Ontario

Ontario March of Dimes
http://www.marchofdimes.ca/dimes/
was http://www.dimes.on.ca/
was http://www.omod.org/: The Ontario Canada March of Dimes hosts a post-polio page which covers their Post-Polio Program.
For other OMOD related services see:
PoliOntario & Polio Power in the mailing list section of our Internet Discussion & Support Forums Directory and Ontario Canada March of Dimes in our Support Group Newsletters Library section.

Quebec

Association Polio Quebec
http://www.polioquebec.org/
was http://www.icecap.ca/polio.qc/
was http://www.accent.net/aitken/: French Language site (English Language version available). A comprehensive Brochure d'information, Syndrome Post-Polio, Les effets tardifs de la polio is included.

Saskatchewan

Saskatchewan Awareness of Post Polio
http://www.geocities.com/sapponline/
was http://www.sfn.saskatoon.sk.ca/health/polio/index.html: "The name, Saskatchewan Awareness of Post Polio says it all. The aim of the association is to heighten awareness and share information throughout the province, with 1) polio survivors, and 2) medical professionals. Our mailing list includes doctors and medical clinics in various fields. Our Newsletter "Sapplings" is distributed to all members, who are encouraged to share with others (eg) family doctor."
Site includes articles and newsletters

Polio Regina
http://nonprofits.accesscomm.ca/polio/: A group of Polio Survivors and their friends who meet in Regina to support each other, develop awareness and get information about Polio and Post-polio complications.

Czech Republic

Polio Association of the Czech Republic
http://www.polio.cz/: Primarily Czech Language site with some information in English.
Polio Association of the Czech Republic is ten years old this year (2000).

Denmark

Danish Society of Polio and Accident victims (PTU)
http://www.ptu.dk/: Danish Language site.
The PTU runs a nation-wide outpatient clinic and counseling service, all free of charge. The management of post-polio sequelae is conducted by orthopaedists, rheumatologists, orthotic engineers and physiotherapists; 50 employees in total. Each year seven to eight hundred polio survivors benefit from these services, 70% of all pateints in the clinic. The Clinic is an integrated cross-professional centre situated in Copenhagen. The services offered are: examination and testing by specialists in rheumatology and rehabilitation, physical training and therapy, social and psychological counselling for ergonomics and working environment.

Finland

Suomen Polio liitto ry [Finnish Polio Federation]
http://personal.inet.fi/yhdistys/polioliitto/
This site not Finnish Polio Federation now, points to ISP.: Finnish Language site. From the site front page:

Polioliiton tehtävänä on edistää ja ylläpitää poliovammaisten mahdollisuutta itsenäiseen ja samanarvoiseen elämään muun väestön kanssa.

Liiton tavoitteena on poliovammaisten tasa-arvo yhteiskunnassa sekä oikean tiedon jakaminen terveydenhoito- ja sosiaaliviranomaisille poliosta ja sen aiheuttamasta vammasta.

Päämääränsä saavuttamiseksi liitto tukee poliovammaisia ja heidän omaisiaan eri elämäntilanteissa, pyrkii vaikuttamaan lainsäädäntöön ja muutoksiin yhteiskunnassa siten, että vammaisten oikeuksia ei loukata, jakaa tietoa poliosta sekä vahvistaa paikallista jäsentoimintaansa.

France

Groupe français de liaison et d'information post-polio: French Language Site. Articles and contact information including a list of medical professionals.

Germany

Polio-Spätfolgen e.V. *Berlin-Germany* http://www.polio-berlin.de/ was http://ourworld.compuserve.com/homepages/polio/: German Language Site. This is the web site of the Post-Polio support group based in Berlin. It appears to be comprehensive in content and well maintained by Karl-Heinz Jeschke.

Ireland

Post Polio Support Group (PPSG)
http://www.ppsg.ie/
was http://homepage.tinet.ie/~ppsg/

The PPSG is based in Dublin. The website provides background and contact information on the group which started up in 1993.

Previous Conferences:
See our World-Wide Conference and Seminar Diary Conference Card #0003

Japan

Polio Association of Hokkaido
http://village.infoweb.or.jp/~fwgi1588/index.htm
Site no longer exists.: Japanese Language site (requires appropriate character set). Some English.
"Welcome to Polio Ass. Hokkaido Japan. This is a new association established in Sapporo, Hokkaido, Feb. 1, 1997 as a place to exchange information of Polio and Post Polio. We try to help Polio Survivors learn about ways to cope with their conditions. We have learned through internet that there are a lot of Polio Home Pages in the world. But there are few in Japan. So this will be one of the unique sources to find companions both in Japan and abroad."

New Zealand

Post-Polio Support Society NZ (Inc)
http://www.postpolio.org.nz/
was http://www.health.net.nz/postpolio/

"The Society has 22 district groups or branches which operate autonomously. The national character is provided through the national address system and, in part, the quarterly newsletter and through the Board of Management."

We also have a number of leaflets in our library that are published by the Post-Polio Support Society NZ (Inc). See under Walker, J.M., Ph.D.

Direct Newsletter links are available in the Support Group Newsletters section of our Library.

Portugal

Associação Pós-Pólio de Portugal
http://www.geocities.com/HotSprings/Resort/4652/
This website not Associa��o P�s-P�lio de Portugal.
Este Web site n�o Associa��o P�s-P�lio de Portugal.: Portugese Language Site. In addition to contact information the site includes Fundadores [A list of Founders], Estatutos Da Associação [Statutes of Association] and Leituras Recomendadas [a bibliography of recommended readings].

Sweden

Riksförbundet för Trafik- och Polioskadade
http://www.rtp.se/: Swedish Language Site.

Switzerland

Schweizerische Interessengemeinschaft für Polio-Späfolgen (SIPS) Communauté Suisse d'Intérêts des Suites tardives de la Polio (CISP) http://www.polio.ch/: French and German Language Site.

"La Communauté Suisse d'Intérêts des Suites tardives de la Polio (CISP) a été fondée en 1991 par des personnes atteintes de la poliomyélite et ce sont ces personnes qui en assument la direction."

UK

National | Cornwall | Leicestershire | Lincolnshire | Sussex

UK National

The British Polio Fellowship : The Scottish Post Polio Network

The British Polio Fellowship
http://www.britishpolio.org.uk/
http://www.britishpolio.org/

Please note that the BPF have officially opened their new web site in January 2001.

Ground Floor
Unit A
Eagle Office Centre
The Runway
South Ruislip
Middlesex. HA4 6SE
UK
Telephone (FreePhone): 0800 0180586 Facsimile: +44 (0)20 8842 0555 Email: info@britishpolio.org

Registered Charity No. 206690

As of February 1997, a page of information about the late effects of polio, in a publication called "Guidelines", will be distributed to all G.P. surgeries in February, June and October each year. "Guidelines" has been introduced to assist clinicians in drawing up practice and locality primary care clinical guidelines. As well as being distributed to G.P.s the total circulation includes members of Clinical Audit Groups; Pharmaceutical Advisers, Medical Advisers and Public Health Directors at Health Executives and Health Authorities; Clinical Directors and Hospital Pharmacists; and the NHS Executive.

Two booklets originally published in Australia, are available from the BPF. They can also be found in our library: A practical approach to the late effects of polio and The late effects of Polio - Information for Health Care Providers

The Scottish Post Polio Network
http://www.sppn.org.uk/: Newly formed in March 1999. For additional information also see Introduction to the Scottish Post Polio Network

UK Local

Cornwall

The Cornwall Post-Polio Support Network
http://cppsn.originalthinktank.org.uk/: Ceased.

Leicestershire

The Leicestershire Post-Polio Support Network
http://www.post-poliouk.org/
was http://freespace.virgin.net/james.mcvay/
Formerly Post-PolioUK, the Leicestershire Post-Polio Network and the Leicestershire Polio Network.: The Leicestershire Post-Polio Network with whom we, The Lincolnshire Post-Polio Network, work closely. Leicestershire were the first in the UK to start a network along the lines developed by G.I.N.I..

Lincolnshire

The Lincolnshire Post-Polio Network, the organisation behind this web site. A complete redesign and rebuild of the site is in progress. The current site will continue to function throughout the new development and is also accessible via our new domain name http://www.lincolnshirepostpolio.org.uk. Ongoing status reports will be posted at the Web Site Rebuild Centre. Our contact information can be found the end of this section of our directory.

The British Polio Fellowship (Lincolnshire Branch)
Non-Internet Entry: A local branch of the national British Polio Fellowship. Meetings take place at 7pm on the second Monday of every month at Ancaster Day Centre, Boundary St, St. Catherine's, Lincoln. Anyone wishing for more information should contact their Chairman, Martin Joy on (01522) 595401.

Sussex

The British Polio Fellowship (Worthing & Sussex Branch)
http://www.worthingbpf.co.uk/: A local branch of the national British Polio Fellowship.

USA

USA National

The National Easter Seals Society : Polio Connection of America : P.R.Y.S

See also the International Polio Network (I.P.N.) who are headquartered in the U.S.A.

The National Easter Seals Society
http://www.easter-seals.org/
was http://www.seals.com/: Provides therapy services and post-polio support groups throughout the USA.

Polio Connection of America
http://www.geocities.com/w1066w/
was http://village.ios.com/~w1066/

Polio Connection Publications
Polio Health Sources
Polio Connection Purpose
Polio Resources
Polio Support Groups

P.R.Y.S
http://www.prys.net/
Site no longer exists.: According to P.R.Y.S. their mission is "to assist people suffering from Post-Polio Syndrome (PPS) in the purchase and/or acquisition of: physical support devices (i.e. wheelchairs, braces, crutches, etc.), medical treatment for PPS, medication for that treatment. Also, through literature and the world wide web, to inform the public and medical community of PPS, its effects and symptoms, possible treatments and places to obtain that treatment."

USA Local

Alabama

Birmingham Post-Polio Support Group
http://ppsr.com/groups/bppsg.html
was http://www.bppg.org/: Background, newsletter, meeting and contact information.

Mobile Area Post-Polio Support Group (MAPPSG)
http://www.postpoliosg.org/
was http://members.aol.com/MAPPSG/index.html
was http://member.aol.com/mawmawt/
was http://member.aol.com/VMoore4474/: MAPPSG are now a part of Post-Polio Support on the Alabama-Florida-Mississippi Gulf Coast (Mobile Area Post-Polio Support Group and Pensacola Post-Polio Support Group).

Arizona

Polio Echo, Inc of Arizona
http://www.polioecho.org/
was http://aztec.asu.edu/polioecho/: Information about the group including meetings and library services.

Polio Epic Support Group of Tucson, Arizona
http://www.polioepic.org/
was http://www.azstarnet.com/~polio/: Information about the Group including meetings plus latest newsletter.

California

The Polio Survivors Association
http://www.polioassociation.org/
was http://www.polio-association.org/: "The Polio Survivors Association is a California based 501(c)(3) non-profit corporation. Since 1975 we have dedicated ourselves to the task of improving the quality of life for severely disabled polio survivors. When the Polio Survivors Association was incorporated few people were aware of polio's late effects. We are working with local polio support groups, medical professionals, and public agencies to gain a greater understanding of this new disabling condition."

San Diego Polio Survivors Group
http://polio.home.mindspring.com/
was http://hometown.aol.com/jsan333/club/index.htm: San Diego Polio Survivors is an unoffical, all volunteer, non-commerical, organization that meets to share information about polio and post polio syndrome (PPS) for those who live in the San Diego County area and for anyone else regardless of where they live.

Post Polio Activities in San Diego
http://members.tripod.com/sandiego_polio/: Covers two Sandiago support groups including North San Diego County Support Group. Meeting and contact info plus Post Polio Notes Newsletters.

The South Bay Post Polio Support Group
http://www.ci.torrance.ca.us/2518.htm
was http://www.torrnet.com/city/councils/comserv/disabled/postpoli.htm: Support group for Torrance, California. As well as contact information, site includes copies of newsletters.

Colorado

Colorado Post-Polio Connection
http://co.easterseals.com/site/PageServer?pagename=CODR_postpolio_support
was http://www.eastersealsco.org/postpolio/postpolio.html
was http://www.coeastseal.org/postpolio.html: Support groups in Aurora, Boulder, Colorado Springs, Canon City, Denver, Fort Collins/Loveland, Grand Junction, Greely, Lakewood and Thornton. Easter Seals Colorado also has a Post Polio Library with many books, videos and audio cassettes.
See NewsBites for Conference Report of Colorado's 1998 Post-Polio Conference "Future Approaches for Polio Survivors" that took place during August 28-29th 1998.

Connecticut

The Polio Outreach of Connecticut
http://www.the-polio-outreach-of-ct.com/: The Polio Outreach of Connecticut USA exists to enhance the lives and independence of Connecticut�s polio survivors by promoting education, support, and information, while raising community awareness of polio and post-polio syndrome. The organization is a nonprofit support group, providing information, moral support, and shared knowledge related to living with the aftermath of polio.

Florida

In addition to the entries below, a list of support groups in Florida can also be found at http://www.postpoliosupport.com/PostPolioSupport-Support.htm

Florida East Coast Post-Polio Support Group
http://www.iag.net/~bgold/polio.htm

This group has monthly meetings with guest speakers and produces a bi-monthly newsletter. Annual Membership fee is currently $5.

Contact Address:
12 Eclipse Trail
Ormond Beach FL 32174
USA

For further information call:
Barbara Goldstein at 904 676-2435 (email bgold@america.com)
Donna McKenney at 407 574-7898

LincsPPN are guesting on this site the following Florida East Coast Post-Polio Support Group Newsletter's:
July/August 1998 Vol 6 No 1
January/February 1998 Vol 5 No 4
More recent editions can be found at their own site.

Previous Conferences:
See our World-Wide Conference and Seminar Diary Conference Card #0015

North Central Florida Post-Polio Support Group
http://www.postpoliosupport.com/
was http://www.mfi.net/users/mcmahan/: Newsletter, selective article archive and contact information.

Post Polio Association of South Florida
Non-Web Entry (website coming Summer 2006)

This group has bi-monthly meetings with guest speakers and produces a bi-monthly newsletter.

Contact Address:
2660 SE 7th Place
Homestead, FL 33033

For further information call:
Barbara Gratzke at 305-230-0687 (email ppsofsouthfl@aol.com)
Nanette Wulf at 305-247-3956

PPS Support Group of Southern Hillsborough County, FL
Non-Web Entry: Meets 4th Thursday of months October thru April.
Contact the Support Group:
c/o Carol Norris Vincent
2515 Langtree Court
Sun City Center, FL 33573
Phone 813.634.7670
E-mail wavcnv@yahoo.com

Georgia

The Atlanta Post-Polio Association (APPA)
http://www.atlantapostpolio.com/
was http://www.atlantapostpolio.org/index.html
was http://petitt.phy-astr.gsu.edu/~phygap/appa1/appa2/appa/appa.html

The Atlanta Post-Polio Association New and events.

Previous Conferences:
See our World-Wide Conference and Seminar Diary Conference Card #0009

The FDR Post-Polio Support Group
http://www.rooseveltrehab.org/Post%20Support%20Group.htm
formally the West Georgia Area Post-Polio Support Group.
Support group details no longer available at the above site.: Advise check with Roosevelt Warm Springs Institute for Rehabilitation.

Idaho

Northern Rocky Mountain Easter Seal Society (Idaho, Montana & Wyoming)
http://www.goodwill.org/greatfalls/
Support group details no longer available at the above site.: Jack Schwartz would like to call everyone's attention to Post-Polio support group contacts in the Northern Rocky Mountain area. This site appears to be directed at people with disabilities in general but there are indeed references to Post-Polio support groups - LincsPPN Web Administrator.

Iowa

Iowa Polio Survivors Group
http://www.iowapoliosurvivors.org/: Provides information and education for those dealing with the late effects of polio so full and enriching can be continued as new chaallenges are faced. As well as contact details and meeting dates several recent newsletters are available for download.

The Siouxland Post-Polio Network (Iowa)
Non-Internet Entry: The Siouxland Post-Polio Network, a self-advocacy group, is supported by St. Luke's Rehabilitation Services of Sioux City, Iowa. Programs are presented on the second Tuesday in the months of April, May, June, Sep.. Oct., and Nov. at 7:30 p.m. All programs will be held at St. Luke's Regional Medical Center, Meeting Room #2, 2720 Stone Park Blvd., Sioux City, Iowa. Volunteers are available for support and information throughout the year. For information on late effects of polio, program schedule, or to speak to a volunteer call St. Luke's Rehabilitation Services at 712-279-7080.

West Central Iowa Post Polio Support Group
http://www.geocities.com/HotSprings/Villa/5545/
Support group details no longer available at the above site.: Regular monthly meetings in Denison, Iowa. See web site for details.

Minnesota

PPASS MN (Post Polio Awareness & Support Society of Minnesota)
http://ppassmn.org/newpassweb1.html
was http://www.ppassmn.org/: There are a number of chapters throughout the state (see the web site). For further information contact Larry Kohout at larrykohout@comcast.org or by calling 952-835-5725 or 1-888-435-5725.

Montana

See Idaho

Nebraska

Nebraska Polio Survivors Association
http://www.ne-polio.org/

"Nebraska Polio Survivors Association was founded in 1984 by Nancy Baldwin Carter, a polio survivor who served as its first director. NPSA is designed to help polio-survivors and their families deal with the late effects of polio and to encourage those in the health care community to participate actively in post-polio care. Since its beginning, NPSA has sent information to thousands of individuals throughout the United States as well as many foreign countries. NPSA has sponsored five previous post-polio conferences and publishes a bi-monthly newsletter, GLEANINGS."

All correspondence should be sent to:
Nebraska Polio Survivors Association
PO Box 45139
Omaha NE 68145-0139
Email mjbarnett@worldnet.att.net

Previous Conferences:
See our World-Wide Conference and Seminar Diary Conference Card #0005

New Jersey

The New Jersey Polio Network (NJPN)
http://www.njpolio.org/
was http://community.nj.com/cc/NJPNPolio/

A statewide organization devoted to providing information about PPS to polio survivers, their families and friends and to the healthcare community through an annual conference, a quarterly newsletter, their website, and a number of local chapters.

Previous Conferences:
See our World-Wide Conference and Seminar Diary Conference Card #0019

Atlantic County Post-Polio Support Group
http://community.nj.com/cc/poliosupport/
Site no longer exists: Contact information, news, important dates and links to post-polio resources.
Chapter of the New Jersey Polio Network.

The Monmouth County Post-Polio Support Group
http://www.expage.com/postpolio/
Site no longer exists: Holds monthly meetings to support one another and share information. Referrals, discussions, guest speakers, and networking are some of the techniques used to help members cope and gain knowledge of the disease.
Chapter of the New Jersey Polio Network.

The Raritan Valley Post-Polio Support Group
http://community.nj.com/cc/RVPOLIO/
Site no longer exists: Serving Central New Jersey. Information about PPS and allied topics plus an opportunity to socialize are provided at 5 meetings and local newsletter during the year.
Chapter of the New Jersey Polio Network.

North Carolina

The Land Of The Sky Post Polio Resource/Support Group
Non-Internet Entry

We are located in Asheville, North Carolina. We meet once a month on the second Saturday from 1:00 to 3:00pm at CarePartners in the Seymour Auditorium, Asheville, N.C.. Our Chairperson is Sandy Warren and her phone number is 828 712-4193 (e-mail address sandywarren@hotmail.com). Co-Chairperson and Newsletter Editor is Lynn Young and her phone number is 828 765-7714 (e-mail address young1904@bellsouth.net). We have Speakers at just about every meeting and then have a session after the speaker for gathering information from each other and sharing information. We are always welcoming new members so if you live anywhere near our area then come to the meetings, you will be glad that you did. We send out a Newsletter quarterly so if you would like to get on our mailing list please just let Sandy or Lynn know and they will put you on it.

Oregon

Easter Seal Society of Oregon
http://www.oregonseals.org/: Site no longer has specific information concerning Post-Polio support groups.

Texas

Texas Polio Survivors' Association (TPSA)
http://www.texaspolio.com/
was http://www.texaspolio.org/
was http://www.tpsa.org/: Information about the Association plus contact details.

Virginia

Central Virginia PPSG
http://www.cvppsg.org/
was http://www.vaseals.org/ppsg.htm

The website includes newsletters, library and resource links as well as contact information.

See also the Lincolnshire Post-Polio Library Catalogue Dr. Henry writes.....

Previous Conferences:
See our World-Wide Conference and Seminar Diary Conference Card #0002

The Roanoke Polio Connection
http://members.tripod.com/~rkepolio/: Introduction and contact information.

Washington

Polio Outreach of Washington
http://polio.dyndns.org/polio/
The above "Polio Information and Support Site" is not affiliated with Polio Outreach of Washington: Polio Outreach of Washington currently has fifteen local support groups spread throughout the state.
Polio Outreach of Washington
616 SW 152nd St, Ste C
Burien, WA 98166
(206) 248-2442
toll free in Wa state: (800)609-5538
e-mail: polio1@juno.com
President: Kandi Lair kjlair@atnet.net
Vice President: Rona Nelson rona@wolfenet.com
See also List of Polio Outreach of Washington Local Support Group Contact Information & Meeting Dates.

Polio Experience Network (Spokane, Washington)
http://www.PolioNet.org/: Polio Experience Network (P.E.N.) is a Washington state-registered charity whose goals include: 1) giving emotional and informational support to polio survivors, their families and friends; 2) helping educate the medical community and the public in general about post-polio syndrome; and 3) helping individuals with practical needs. P.E.N. works largely through the support group Polio Outreach of Spokane.

Washington, D.C.

The Polio Society of Washington DC
http://www.poliosociety.org/
was http://www.polio.org/

In 1982, a group of Washington, D.C. area polio survivors began to meet regularly to share their experiences and to voice concerns about the lack of public awareness and national attention on the late effects of polio, as well as the lack of research being conducted on post-polio's cause(s) and treatment. Formally established in 1984 as the Post-Polio League for Information and Outreach, The Polio Society as it is now known, is dedicated to delivering state-of-the-art medical and other health-related information to the polio community, their families and friends, and the health care professionals who serve them. Begun by polio survivors for polio survivors, the Society is committed to being a voice for the over 650,000 individuals who live with the after effects of polio today.

The Polio Society was created for the purpose of providing educational resources and support group services to people who had polio and are now experiencing the late effects of polio. We are a chartered non-profit organization governed by a board of directors composed primarily of polio survivors and family members of polio survivors. Our programs and services are funded by membership dues, gifts and private contributions.

We continue to publish our magazine Options and the newsletter Options Express. We also host events.

Wisconsin

Post-Polio Resource Group (PPRG) of Southeastern Wisconsin
http://www.geocities.com/HotSprings/4760/
Site no longer exists: PPRG was formed in 1985 by a group of polio survivors who were experiencing new symptoms of pain, weakness, fatigue, and breathing problems. The purpose of the group is to provide information and support to post-polio survivors and their families and to educate the medical community and the general public about post-polio syndrome.
The majority of members are from southeastern Wisconsin, but the PPRG includes members from all across Wisconsin and the U.S. Membership is open to anyone or any organisation interested in post-polio, and meetings are open to the general public.

Wyoming

See Idaho

The Lincolnshire Post-Polio Network
Registered Charity No. 1064177
An Information Service for Polio Survivors and Medical Professionals

PO Box 954, Lincoln, Lincolnshire, LN5 5ER United Kingdom
Telephone: +44 (0)1522 888601
Facsimile: +44 (0)870 1600840 (24 Hr availability)

The inclusion of a resource in this directory does not necessarily constitute endorsement or approval by the Lincolnshire Post-Polio Network.

Document preparation: Chris Salter, Original Think-tank, Cornwall, United Kingdom.
Primary Document Reference: <URL:http://www.ott.zynet.co.uk/polio/lincolnshire/directory/org.html>
Alternate Document Reference: <URL:http://www.zynet.co.uk/ott/polio/lincolnshire/directory/org.html>
Last modification: 19th May 2009.
Last information content change: 19th May 2009