Directory: Polio Survivors on the Internet [Lincolnshire Post-Polio Network]

Polio Survivors on the Internet

This section is in Polio Survior last name alphabetical sequence. Where we have been unable to determine last names, the entries have been added at the end of the list.

The only criteria applied to selection of links for this section of the directory is that the site author should be a polio survivor. These are Polio Survivors who have created their own web sites or pages. They are as diverse in content as Polio Survivors are diverse in character and interests.

Julia Ashley I'm not 'that woman with callipers'.
http://members.tripod.com/~juliaashley/ U.K.: Autobiographical. Subtitled "I am simply a woman - without the appendage"

Omega BakerHome Page
http://www.ccms.net/~omegab/ U.S.A.
Site no longer available.
was http://www.realtime.net/~omegab/writing.html: Autobiographical. Omega with stories relating to her polio experience. Working on several writing projects - a book about her experiences as a teenager with physical disability and freelance magazine articles. Recently had post-polio article published in New Mobility.

"One of my latest pieces published by New Mobility is entitled Searching for Polio. It featured in the August 1997 issue. If you read it, please send me some email and let me know what you think. (I love to get email.)"

Paul Booth Home Page
http://bahai-faith.manvell.org.uk/paulbooth/index.htm England (East Sussex)
was http://www.manvell.org.uk/paulbooth/
was http://www.nur.win-uk.net/: Comparative Religion (especially the Bahá'í Faith), Complimentary Therapies and Humour are among the subjects covered in addition to the Late Effects of Polio. Paul Booth, Baha'i, died November 2000. This is his Website; and it is hoped that it will help keep the memory of this dynamic and devoted individual alive among those who knew him. [CM].

Roberta (Acheson) Britt Robbie's World
http://www.star-telegram.com/homes/robritt/index.htm U.S.A. (North Central Texas)
Site no longer available.: Personal page includes Poems and Thoughts, Friends and Family, and Genealogy in addition to Polio and Disabilities Resources.

John A. Bruce Access-Ability
http://access-ability.org/ U.K.
was http://www.Access-Ability.co.uk/: Disability resources site covering Products, Books, Health & Government, Travel etc. Non-commercial, original domain http://www.Access-Ability.co.uk/ now an online store for disability aids.

Art Butler PATH - Performing Arts Theatre for the Handicapped
http://www.clifhanger.com/path/
Site no longer available.: Art is president of PATH which offers an opportunity for the Physically Challenged to be properly represented in the performing arts. He also hosts the PATH SHOW broadcast on Audionet on Saturday mornings between 8:30 and 9:00 am (eastern time) which you can listen to via RealAudio.

"C.J." Calabrese "C.J.'s" POLIO PAGE
http://pw1.netcom.com/~calabrec/index.html U.S.A.
Site no longer available.: Story of "C.J." Calabrese born on June 30, 1995, a healthy and beautiful baby boy, who later contracted polio from OPV. Web page authored by parents.

Philip Childress Post Polio Syndrome Informational Quick Start
http://www.plee.com/pps/ U.S.A.: Well constructed and well written introduction to Post-Polio Syndrome.
Post Polio Orientation includes: "Introduction to Post Polio Syndrome", "I've Had Polio.What Now?", "A Three Point Stratagy", "How Do I Find A Post Polio Doctor?", "Networking With Others", "'Book-up' On PPS" and "Forming A Survival Stratagy".

Carl Cortez Polio Resources of Louisiana
http://home.earthlink.net/~cjcortez/ U.S.A.
Site no longer available.: Biography, Louisiana specific and other Internet polio resources. Site contains animation and background music.

Linda Dempster Polio and Post Polio Resource Page
http://members.aol.com/DEMP12/pps_help.html U.S.A.: As per title.

Francisco de Sales Bienvenidos a "Las páginas de Argonquot"
http://www.arrakis.es/~argon/main.htm Spain
Site no longer available.: Francisco de Sales Escribano Rubio has created a Polio and Post-Polio information section at this site (in Spanish).

Michael R Dolliver Mike's Polio Story
http://waterfordalumni.com/html/mikes_polio_story.html U.S.A.: "Mike's Polio Story as inspired by reading Jann’s detailed remembrances... Before you read my story, read Jann’s Story since that is what inspired me to share my story and to share with other Polio Survivors some of those memories and experiences we all have had due to Polio. There is a tremendous bond with all Polio survivors although we have met very few as we traveled through the years. Twice chosen, the Polio of old is now Post Polio Syndrome."

Alan Dove Polio Information Centre Online (PICO)
http://microbiology.columbia.edu/pico/ U.S.A.
was http://128.59.173.136/PICO/PICO.html: Alan Dove has set up PICO, the Polio Information Center Online. PICO is organized as a series of "chapters" on different subjects related to polio, i.e. History, Pathogenesis, Epidemiology and Cellular Life Cycle. They are extensively interlinked and also linked to relevant outside resources.

Eric Eales Kelowna Days
http://rlis.com/kelownadays/index.html Canada
Currently Unavailable
was http://www.cnx.net/~eae/: It's a while since Eric Eales posted a chapter from his autobiography to one of the mailing lists. The anticipation of reading enjoyment awaiting the arrival of a new chapter is sorely missed. Eric's skill in evoking a sense of time and place when relating his lifes experiences is consumate. Now you can read a small selection of his writing at his new web site. Thoroughly recommended!

Nancy Frick and Richard Bruno The Harvest Center
http://members.aol.com/harvestctr/pps/polio.html U.S.A.: Drs. Richard Bruno and Nancy Frick have created this informative site. Sections include the PPS AUDIO SYMPOSIUM, the COMPUTERIZED ASSESSMENT PROGRAM (CAP) for PPS, VAMPIRE BAIT: The Stress Annihilation AUDIO Workbook, the POST-POLIO LIBRARY: Articles on PPS for downloading, the Harvest Center Speakers Bureau and F.D.R.'s "We had polio! (Any other questions?)" T-Shirt Transfer. You can also find a selection of their many advisory and research papers on PPS in our own library (see our library catalogue entry for Harvest).

Janice Hartman Jann's PA Dutch Kitchen
http://www.reocities.com/Heartland/Ranch/5212/: Cooking, recipes, nutrition, and autobiographical information with a section on polio plus a seasonal emphasis with What Christmas Means To Me.
Janice Hartman has also written an article Nutrition and Post Polio Syndrome which can be found in the Lincolnshire Post-Polio Library. See the catalogue entry for Hartman, Janice.

Dick Helms Post-Polio Syndrome
http://members.xoom.com/helms/postpolio.htm U.S.A.
Site no longer available.: Autobiographical My Story plus links to post-polio resources.

Bernd Hornung Hornungs House
http://members.tripod.com/~BHornung/ Canada
Site no longer available.: Primarily genealogical covering the authors research on the family names of Hornung and Card. A post-polio section is planned and a recent article from The Edmonton Journal (Monday, November 16, 1998) titled "DEBILITATING DISEASE: Many Polio survivors face more pain, Post-polio syndrome plagues hundreds of thousands who survived dreaded epidemics" is already available.

Norman Jones Norman's Web Site
http://homepage.ntlworld.com/norman.jones/index.htm U.K.
was http://www.users.globalnet.co.uk/~nrjones/index.htm<: Autobiographical.

Klaus Kunert die ultimative SELBSTDARSTELLUNG
http://members.aol.com/klausinb/ Germany.

Klaus Kunert's personal site includes several useful sections on Polio and Post-Polio Syndrome (in German).

Poliovirus-und Impf - Informationen
Post Polio Syndrom - Webseiten

Roseanne Lasater Lasater's Lounge
http://www.reocities.com/SoHo/Workshop/4135/index.html U.S.A.: "Polio survivors find support in the Polio Pool. Meet my Inner Artist in the Creativity Zone. See some of my creations in the Art Zone. Heal your heart in The Psychic Orphanage."

Chava Willig Levy The Chava Willig Levy Corner
http://www.chavawilliglevy.com/ U.S.A. (New York)
was http://ourworld.compuserve.com/homepages/Susieq/cwl.htm: Chava is a New York based author, editor, lecturer and singer. Her site includes a selection of articles she has had published in US national publications such as Family Circle.

Robert Lovering "OUT OF THE DARKNESS: Coping with Disability"
http://www.primenet.com/~arcsphx/outline.htm U.S.A.
Site no longer available.

The complete text of Robert Lovering's book appears to be no longer available for reading online or downloading. However, new and used copies of several titles by the author are available for purchase via Amazon (US) and Amazon (UK) at the time of writing (September 2007).

"When we say coping, what do we mean? In wood working a common tool is a coping saw. It is so named because it is capable of making intricate curves in fitting pieces of wood together, or one piece coping or fitting with the other. Coping in general means: "Struggling or contending with on fairly even terms or with some degree of success." Synonyms are encounter, struggle, compete, contend, strive, engage, face, confront, hold one's own, manage, hold at bay, combat on equal terms. That is what this book is all about. It is to help you manage or contend with living life as a person with a disability. And I might as well get it off my chest now at the very beginning. I am sick and tired of this so-called political correctness garbage. I am tired of those who wear their feelings on their sleeves hoping someone will make some sort of ethnic, minority group, gender, political, or whatever statement over which they can take righteous offense. If you are one of those people, kindly do me a favor and stop reading, toss this in a waste container, or just pass this book on to someone else who is not wearing his feelings on his sleeve. Do yourself and me a favor by not bothering to write or call me and inform me of my offense."

Robert Lovering, a polio survivor in Phoenix, has spent his entire adult life in a wheelchair and has been a counsellor on disability issues for many years.

Interesting viewpoints and perspectives here. Tom Walter

Millie Malone Granny is Off Her Rocker!
http://www.frontiernet.net/~milmal/
Site no longer available.: Millie runs a home-based desktop publishing company. She also belongs to three local support groups, is chairman and newsletter publisher/editor of one and editor of the newsletter of another.

Richard Martinek Post-Polio Information Page
http://home.earthlink.net/~polioinfo/ U.S.A.
Site no longer available.: Richard Martinek has set up a Post Polio Information Page.

Mavis J Matheson, MD Dr. Matheson's Page
http://nonprofits.accesscomm.ca/polio/Mavis.htm Canada: Links to Dr. Matheson's articles.

Bob Mauro The PeopleNet Disability DateNet
http://idt.net/~mauro/ U.S.A.
Site no longer available.: Bob Mauro maintains The PeopleNet Disability DateNet.
"I've created this home page so men and women with disabilities like myself can freely read about love, relationships, and sexuality the way we experience them."
WARNING! This Home Page is for adults 18 and over.

Tom McKeever http://www.postpolio.org/
http://www.postpolio.org/ U.S.A.
was http://spacecon.net/: Tom McKeever's original Braveheart BBS site still exists at http://spacecon.net/.

Mark O'Brien Mark O'Brien's Web Page
http://www.pacificnews.org/marko/index.html U.S.A.: Mark O'Brien, journalist and poet, whose life and work is the subject of the academy award winning documentary Breathing Lessons, offers us some examples of his work. Highly Recommended Reading! LincsPPN Web Site Administration.
Mark O'Brien, an inspirational voice in the movement of disabled people to lead independent lives, died early Sunday morning, July 4, 1999, in his home in Berkeley, Calif. Mr. O'Brien was 49 years old. See Newsbites - 9th July 1999.

John Prestwich John and Maggie Prestwich
www.johnprestwich.btinternet.co.uk
was http://members.xoom.com/jprestwich/
U.K.

JOHN PRESTWICH MBE 24.11.1938 � 27.2.2006

John holds the Guinness World Record for being completely dependant on a ventilator for over 40 years. John and Maggie's website has several articles including "The first is 40 Years a layabout!", an autobiographical account by John and two that were written by a friend of theirs, "Each Saving Breath" and "43 Years in an Iron Lung", the latter published in SAGA magazine in November last year. Also, read about John's Freedom Bed, a project that they hope will give John some mobility independance for the first time since he contracted polio in 1955.

See also "Each Saving Breath, The story of John Prestwich M.B.E." NewsBites 19th December 1997.

Patrick Ross Home Page
http://www.npiec.on.ca/~pross/index.htm
Site no longer available.: Autobiographical.

Jon Schoen Polio Pals Place
http://www.radiks.net/jschoen/ U.S.A.
Site no longer available.
was http://www.webslnger.com/jschoen/: Links plus original material on PPS, CFS etc.

Steve Smy Silver Tongue's Home Page
http://www.angelfire.com/bc/SilverTongue/ U.K.: Autobiographical.

Dick Spear The Rollin' Rat
http://www.azstarnet.com/~rspear/ U.S.A.
Site no longer available.: Dick Spear's Rollin' Rat Web Page. Sections include Adaptions for Daily Living, Cause & Symptoms of Post-Polio Syndrome, History of Polio & Post-Polio Syndrome, Rehabilitation & Therapy, Social Security Information [USA], Meet The "Rat", News From The Rat's Nest, Support Group Newsletters and Other Disabilities Resources. For a list of the titles of articles available on the Rollin' Rat site see our library catalogue, Other Post-Polio Libraries on the Internet.

Tom Walter Polio strikes back
http://www.ocregister.com/news/1997/0197/011597/polio.html U.S.A.: A good article on PPS in the Orange County Register which features Tom Walter (tomincal) and Priscilla Hiers. Unfortunately, the article is no longer freely available at the Orange County Register site. It can be located via their archive section (using search keywords "polio" and "strikes") but access to the complete text requires a small payment. For a list of articles written by Tom and available from our site see Lincolnshire Post-Polio Library Catalogue [by source] W - Walter, Tom

Ernie Wollering Post-Polio Syndrome - Recently Published Medical Articles
http://www. execpc.com/~epwoll/medindx.html U.S.A.
Sites no longer available.: A list maintained by Ernie Wollering of recent medical articles on post-polio syndrome. The list covers 1990 to the present day. Ernie also maintains a list of Internet post-polio resources which is frequently posted to each of the main polio mailing lists. In addition, you can read the latest version of his Post-Polio Internet Resources on the web.
See also Lincolnshire Post-Polio Library Library Assistant

William T. Yates Bill Yates Home Page U.S.A.: Web designer, music-lover, writer, poet, Polio survivor.

Grace Young Grace Young's Energy Conservation Web Page
http://www.reocities.com/HotSprings/4713/ U.S.A.: "As a polio survivor, I have had to make numerous adjustments to my lifestyle for many years. As an occupational therapist at Kaiser-Permanente in Southern California I had the opportunity to develop and teach educational programs to several hundred polio survivors over a period of several years. Much of the material was gleaned from solutions I applied in my own life, and I also learned a great deal from participants in the classes.
Each Month there will be a new topic relating to conserving your energy, simplifying your work, prtecting your joints, or modifying your surroundings - anything which might help to lessen the symptoms of pain and fatigue."
Grace Young has also written articles for various medical journals. A number of these can be found in our library. See Catalogue entry for Young, Grace R., MA, OTR

Jesús Zazo. "El Cocodrilo del Nilo"
http://www.argon.interclub.net/post1.html Spain.
Site no longer available.: Spanish Language site.

Tim Zingale Home Page
http://www.dodgenet.com/~tzingale/otherinterests.html U.S.A.
Site no longer available.: Tim Zingale has updated his web page with articles he wrote for his Iowa polio support group.

Last name not available

Carol Ann ? Carol-Ann's Corner
http://www.vaxxine.com/carolann/
Site no longer available.: Autobiographical. Background MIDI (off control at bottom of page).

Nancie ? No Title
http://www.angelfire.com/ia/treevines/polio.html U.S.A.: Short biographical introduction followed by an extensive list of Internet Post-Polio resources with descriptions.

Susan ? Home Page
http://ro.com/~susan/ U.S.A.
Site no longer available.: Autobiographical. Physical Challanges and Advocacy Tips

The Lincolnshire Post-Polio Network
Registered Charity No. 1064177
An Information Service for Polio Survivors and Medical Professionals

The inclusion of a resource in this directory does not necessarily constitute endorsement or approval by the Lincolnshire Post-Polio Network.

Document preparation: Chris Salter, Original Think-tank, Cornwall, United Kingdom.
Primary Document Reference: <URL:http://www.ott.zynet.co.uk/polio/lincolnshire/directory/survivor.html>
Alternate Document Reference: <URL:http://www.zynet.co.uk/ott/polio/lincolnshire/directory/survivor.html>
Last modification: 5th February 2010.
Last information content change: 5th February 2010.